Get involved in research
The National Osteoporosis Society encourages research projects which aim to improve the prevention, diagnosis and treatment of osteoporosis.
On this page, you will find links to information on research studies currently being carried out into osteoporosis/bone health and ways that you can get involved.
Please note: Inclusion of studies on this page does not imply endorsement or approval of the project or its outcomes by the National Osteoporosis Society.
National Osteoporosis Society Research Grants Committee
Learn more about how the views of people with osteoporosis are represented as the Charity makes decisions on research strategy and fundingRead More
HELP INFORM RESEARCH TO IMPROVE LIFE FOR THOSE WHO BREAK A BONE FROM THE PELVIS DOWN
If you have experienced a broken bone from the pelvis down, care for someone who has, or are a healthcare professional treating patients who have experienced fragility fractures of a lower limb, you can help Oxford University with their project.
The University is working to identify the top ten research priorities to help improve life for people who break a bone in the foot, ankle, leg or pelvis. By filling out a 30-minute online survey, you can help researchers narrow down a list of suggested research areas gathered from their previous survey.
To complete the survey, follow this link before 5pm on 22nd December: https://oxford.onlinesurveys.ac.uk/fracture
The final stage of this project will be a workshop on Thursday 25th January 2018, 9.30am-4.15pm. This is where the final Top 10 priorities for future research in the area of lower limb fragility fractures will be decided. The team would appreciate your participation at the workshop. If you are interested and would like more information, please contact the project co-ordinator: email@example.com.
PARTICIPANTS REQUESTED FOR DENTAL IMPLANT TRIAL
Queen Mary University of London are undertaking research into bone changes around dental implants in postmenopausal women with osteoporosis.
They are hoping to recruit twenty people to their study, which will take place at Barts Health (Whitechapel, London). Unfortunately, they don’t have funding to reimburse travel costs so, realistically, you’d probably need to live in London to be able to take part.
Participants would receive a full mouth dental and gum check, treatment for gum disease (if necessary) and a dental implant.
For more information about what is involved, along with the inclusion / exclusion criteria, please read this download: participant information for dental implant trial.
The Rare UK Bone, Joint and Blood Vessel Study (RUDY)
The study funded by a partnership between the NIHR Rare Diseases Translational Research Collaboration and the Oxford NIHR Musculoskeletal Biomedical Research Unit, University of Oxford, is striving to improve understanding of all aspects of rare bone, joint and blood vessel diseases with the aim of developing new tests and treatments to improve patients' lives.
The first step in doing this is to gather information in order to describe in more detail the different types of rare diseases and what it is like to live with them. The RUDY Study is open to those with rare disorders, including those affected by rare types of osteoporosis (e.g. pregnancy-associated osteoporosis or idiopathic juvenile osteoporosis) and participation is designed to be as simple and flexible as possible. The researchers intend to use questionnaires over a period of five years. You can decide what parts of the study you want to be a part of and how you would like to be contacted, whether by letter, telephone, email or text. You will also be free to change your mind about your participation and your preferences at any time during the study.
National Institute for Health Research (NIHR) Public Reviewer
The National Institute for Health Research (NIHR) needs people with everyday experience of osteoporosis as a patient or carer to comment on research proposals. As a public reviewer for the NIHR Evaluation, Trials and Studies (NETS) programmes, you could be invited to look at a research proposal or commissioning brief related to your own area of experience and answer some key questions to inform the board or panel. Each review is a stand-alone task which is sent to you to do in your own time to an agreed deadline.
The NIHR funds health research that produces evidence for professionals, policy makers and patients so they can make informed decisions. And we know that research that reflects the needs and views of the public is more likely to produce results that can be used to improve health and social care.
To express an interest in being a public reviewer for research proposals, please email us at firstname.lastname@example.org or call a member of our team on 02380 599302. To find out more, visit: https://www.nihr.ac.uk/patients-and-public/how-to-join-in/review-a-research-application.htm
Health Technology Assessment (HTA) Prioritisation Panels
These are key roles which ensure that the public are actively involved in discussions and decisions on the prioritisation of NIHR health research. As a patient/public panel member you will help to identify and raise issues from the perspective of patients and the public that are relevant to the research.
The HTA Programme produces independent research about the effectiveness of different healthcare treatments and tests for those who use, manage and provide care in the NHS. It identifies the most important questions that the NHS needs the answers to by consulting widely with these groups and commissions the research it thinks is most important through different funding routes.
NETSCC periodically runs recruitment campaigns for Public Board and Panel members and current vacancies can be seen seen at: https://www.nihr.ac.uk/about-us/how-we-are-managed/managing-centres/nihr-evaluation-trials-and-studies-coordinating-centre/patient-and-public-involvement-in-research/current-opportunities.htm.
If you have any queries about other opportunities to get involved, such as Public Reviewing, please contact the NETSCC PPI team at email@example.com or 02380 599302.